Perlu Network score measures the extent of a member’s network on Perlu based on their connections, Packs, and Collab activity.
Perlu Pulse score measures how active a member is on Perlu, on a scale of 0 to 100.
Dog account that chronicles our hiking adventures, city exploration, and day to day life. Experienced model for pet apparel ajd accessories companies. Looking for opportunities to grow our circle and collaborate. Especially interested in brands that focus on social issues and environmental protection.
bookworm. tea lover. hiker. lupus & fibromyalgia warrior.
Off days and flares are hard enough without us being hard on ourselves for needing extra care and rest those days. Be kind to yourself. ๐ #LupusFlare #LupusAdvocate #LupusAwareness #SpoonieLife #SpoonieSupport #ChronicIllness #ChronicIllnessAwareness ID: field of purple wildflowers with the words "you don't judge flowers for not blooming every day of the year why do you judge yourself for your off days?" Off days and flares are hard enough without us being hard on ourselves for needing extra care and rest those days. Be kind to yourself.
If you ever get the urge to say this to someone... please don't. Sincerely, everyone with an invisible illness. ๐ #LupusWarrior #LupusAdvocate #LupusWarriors #SpoonieLife #InvisibleIllness #InvisibleIllnessAwareness #InvisibleIllnessLooksLikeMe #SpoonieHumor #SpoonieSupport ID: background image of person writing, with overlay of someone answering the questions
Always grateful to have a great rheumatologist, but the time to drive each way, waiting room, labs, and actual visit is literally half a day. ๐ซ #LupusWarrior #LupusWarriors #LupusAdvocate #LupusAwareness #AutoimmuneWarrior #AutoimmuneAwareness #SpoonieLife #SpoonieSupport #ChronicIllnessHumor #ChronicIllnessSupport ID: woman talking animatedly in front of a background of a medical clinic exam bed
Nobody loves you quite like your dog does. Ollie gets me through every flare, every time I'm so frustrated with my body and/or our broken medical system. I don't know how I managed this illness before he was here to prop me up. The number of tears I've cried into his fur is uncountable. Forever grateful for this nugget. ๐ #LupusAdvocate #LupusWarrior #LupusWarriors #SpoonieLife #SpoonieSupport #LoveOfADog #YorkiePooLove #EmotionalSupportDogs ID: small fluffy dog gazing fondly up at camera (human)
Ollie's been having an existential crisis every time I take him out. "Is pooping worth blowing away to Oz?" Enough with the gusting winds! Collar: @kandmcollars OLLIE15 #YorkiePoos #YorkiePoosOfIG #SmallDogProblems #DogMomsClub #Dogfluencer #FunnyDogVideos ID: small dog with his hair whipping around in gusting winds. overlay is drake talking about how hard it was and how he needs a warrior spirit.
Women are disproportionately affected by lupus, which recent research suggests may be due in part to how one of our x chromosomes is deactivated. ๐ #LupusWarrior #LupusWarriors #LupusAdvocate #LupusAwareness #AutoimmuneWarrior #AutoimmuneAwareness #SpoonieLife #SpoonieSupport #internationalwomensday2024 ID: Purple background with silhouettes of diverse women in varying shades of purple. Text reads: 90% of lupus warriors are women. sub text at bottom reads @morethanmylupus, source: lupus.org
So excited to be joining @lupusorg as an ambassador! ๐๐ฆ ID: purple background reads "big news" with 3 pics: purple t-shirt saying ambassador with small dog holding his paw on it, lupus foundation of America logo, ambassador pin. #LupusWarrior #LupusWarriors #LupusAdvocate #LupusAwareness #AutoimmuneWarrior #AutoimmuneAwareness #SpoonieLife #SpoonieSupport
That kind of day. ๐ Should we make this a series? LMK if you have a good brain fog story to share! #LupusAwareness #LupusAmbassador #LupusAdvocate #LupusWarrior #LupusFighter #SpoonieSisterhood #SpoonieSupport #SpoonieLife #RisingVoices #LupusWarriors #BrainFog ID: title says โbrain fog diariesโ mock tweet reads: โMe: opened my airpods case and then tried to put one in my ear - except my hand was empty because I forgot to actually take an airpod out of the case; Me 30sec later: why canโt I hear anything? airpods were still in the case ๐คฆ๐ฝโโ๏ธโ
๐ ! Should we make this a Friday series? LMK if you have a good brain fog story to share! #LupusAwareness #LupusAmbassador #LupusAdvocate #LupusWarrior #LupusFighter #SpoonieSisterhood #SpoonieSupport #SpoonieLife #RisingVoices #LupusWarriors #BrainFog ID: title says "brain fog diaries" mock tweet reads: "I've been walking around a hotel all day with these shoes on" beside a picture of feet wearing mismatched sandals
Today we celebrate the signing of the Americans with Disabilities Act (ADA). This year, I'm celebrating by filing for a diabled parking tag. It's long overdue but I struggled because I felt like I would be taking a spot from someone else who needs it. But at this point, I'm avoiding going to stores because I can't handle the energy expenditure and stain on my body from walking around. Walking in from a parking spot is a big part of that. So it was time. ID: text reads "happy national disability independence day" laptop shows application form for Pennsylvania disability placard application. Iphone shows picture of disability parking sign. Search bar at bottom shows search for "disability support services" #NationalDisabilityIndependenceDay #DisabilityPride #DisabilityPrideMonth #DisabledIsNotABadWord #DisabiltyIsDiversity #DisabledAndProud #DisabledLife
๐ ! Should we make this a Friday series? LMK if you have a good brain fog story to share! #LupusAwareness #LupusAmbassador #LupusAdvocate #LupusWarrior #LupusFighter #SpoonieSisterhood #SpoonieSupport #SpoonieLife #RisingVoices #LupusWarriors #BrainFog ID: title says "brain fog diaries" mock tweet reads: Me: <holding up the ends of my hair in one hand> My hair is dripping everywhere, I guess I'll just let my t-shirt soak it up; Also Me: <holding my bath towel in my other hand>
Who needed to hear these today? Save for your next flare ๐ #LupusAwareness #LupusAwarenessMonth #LupusAmbassador #LupusAdvocate #LupusWarrior #LupusFighter #SpoonieSisterhood #SpoonieSupport #SpoonieLife #RisingVoices #LupusWarriors #31DaysofPurple ID: title "flare day reminders" blurbs of text "it's not your fault that you're flaring" "hydration is essential" "take a nap, you need it" "this flare will pass (eventually)" "it's not a failure to ask for help" "non-essential chores & activities can wait - your loved ones will understand"
Having to let go of friendships because they couldnโt or wouldnโt deal with my new reality was one of the hardest parts of coming to terms with my diagnoses. But some friends took the time to learn, empathize, and support me. They loved me for me in all of my iterations and Iโll forever grateful to have them in my life. ๐ Thanks for sharing @bb_charmers IB: #LupusAwareness #LupusAwarenessMonth #LupusAmbassador #LupusAdvocate #LupusWarrior #LupusFighter #SpoonieSisterhood #SpoonieSupport #SpoonieLife #RisingVoices #LupusWarriors #31DaysofPurple Picture shows silhouette of friends hugging each other on a beach at sunset with purple tones. Quote reads: As you evolve, notice who says "I'm glad to know this version of you too" by Sophia Joan Short
This weekend was so much fun but I am exhausted from all the family events. Trying to take it easy today as much as I can. ๐ #LupusAwareness #LupusAwarenessMonth #LupusAmbassador #LupusAdvocate #LupusWarrior #LupusFighter #SpoonieSisterhood #SpoonieSupport #SpoonieLife #RisingVoices #LupusWarriors #31DaysofPurple ID: she believed that she could but she was exhausted so she decided to rest instead and try again tomorrow. With the words "believed," "exhausted," "rest instead," and "try again tomorrow" highlighted