Joanna Hanaka

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Joanna (she/her) 26. Queen of allergies. 👑 Loves to promote both mental and physical health and making it accessible to as many people as possible!

Location Wallington, NJ United States
Country United States of America
Member Since MAY 16, 2022
Social Audience 44K
joannanobanana 12K Last Month Last 3 Months
  • Posts 8 34
  • Engagement Rate 4.4% 5.8%
  • Sponsored Posts 4 9
  • Sponsored Engagement Rate 2.1% 1.4%
  • Avg Likes 493 643
  • Avg Comments 15 24
  • No categories for me, yet!

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Double tap if you can relate! 💛 When you're chronically ill, you tend to have to be much stricter in terms of how much energy you spend during the day, especially when you deal with symptoms like fatigue and post malaise exertion. This also applies to recovering from a flare up. There are some things that we get to do like hang out with friends, clean the house, take a walk, etc. for the sake of our mental health but it can be tricky in terms of physical health. That's why it's important to allow yourself to be proud of yourself for the things which seem small to others.Others don't understand the amount of effort and calculation of recovery time. Chronic illness math is tricky and individualized not only by chronic illnesses/symptoms but also by how much an activity might be worth the flare up for one chronically ill person but not another chronically ill person. Do you have any specific rules or techniques in regards to "chronic illness math"? Comment below! For more content like this follow @joannanobanana Share this post on your story to help spread the message! 💛 #MastCellActivationSyndrome #EhlersDanlosSyndrome #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome #ChronicIllness #ChronicallyIll

#ad To add onto this story, this was during a time when I didn’t have insurance. I was beyond grateful that everything was resolved without my lack of insurance being an issue. Also, two days later I felt so much better! Personally, I used wisp to get the proper treatment for a yeast infection, but wisp offers help with a wide variety of treatments: bacterial vaginosis, UTI, cold sores, skincare, and so much more! Check out wisp to see how it can help you! Make sure to use the code “JOANNA35” for your 35% off! #Health #Wellness #YeastInfection #BacterialVaginosis #Skincare

Double tap if you agree! 💛 Dynamic disabilities are something that’s difficult for a lot of nondisabled people to grasp. How could we be feeling relatively okay one moment but much more symptomatic the next? One way of explaining it is by pointing out triggers for our dynamic disabilities. It makes the concept a little bit easier to comprehend. For example, one of my triggers for my MCAS is fragrance. If I walk into a location while I’m feeling relatively good and come across fragrance, it might cause my blood pressure to drop, wheezing, dizziness, difficulty breathing, etc. Triggers can be very individualistic in chronic illnesses like MCAS but there are some more common triggers like mold. For some disabilities, the triggers might be the same or similar within people who share that same disability. Many disabilities are dynamic as there are a lot of highs and lows which people experience in regards to their symptoms. Do you have a dynamic disability? If so, how does its dynamic nature affect your daily living? Comment below! Follow @joannanobanana for more content like this! Share to help spread awareness! 🥰 #DynamicDisability #MastCellActivationSyndrome #MCAS #Dysautonomia #EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome

#ad Let’s wrap up Dysautonomia Awareness Month with these candy corn compression socks! 💛 Awareness months always tend to end with me feeling like I wish I did more but this time around I feel inspired to keep going with my advocacy. So many of my Dysautonomia friends put so much awesome content and resources out there. I’m so happy that I got to share their work and support them as much as I could! 💛 As for me, in regards to POTS specifically I’m working on POTS friendly recipes and POTS friendly workouts. I’m so excited to share those with you soon! As we go into November aka my birthday month, I’m reflecting on what I want to accomplish within my advocacy. I want to provide resources. I want to help people feel better both physically and emotionally. I want to find ways to continue building our community! 💛 Thank you to @vimvigr for sending these over my way. Trying these compression socks out was a great way to celebrate! Use code “JoannaNoBanana” for 15% off the @vimvigr website! #Dysautonomia #DysautonomiaAwarenessMonth #POTSSyndrome #PosturalOrthostaticTachycardiaSyndrome

Let's talk about this! 💛 When it comes to skin symptoms, it seems like a lot of people only think of it on a visual level. That's the least of my worries when my skin feels like it's burning. Skin symptoms can be debilitating! This month marks 2 years of me being on oral cromolyn sodium which helped tremendously with my skin symptoms. I used to wake up in pain daily due to these symptoms. It took 3 months of the meds in order to wake up one day not in pain. I still have some rougher days when it comes to skin symptoms but it used to be at a point where everything was hurting my skin constantly. I couldn't hold my partner's hand for support. Clothes caused extreme pain. I couldn't even try about it because tears inflamed my eyes too much. My skin pain is due to Mast Cell Activation Syndrome, but there are also a lot of other skin conditions out there (MCAS is a full body condition but my symptoms are primarily skin and gut) which can be debilitating. It's important that skin conditions and other conditions which include skin symptoms are taken seriously! Have you found that people don't take your skin condition/symptoms seriously? Is there another condition/symptom that you have which also isn't taken seriously? Comment below! For more content like this follow @joannanobanana Share this post on your story to help spread the message! #MastCellActivationSyndrome #EhlersDanlosSyndrome #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome #ChronicIllness

#ad So impressed with this gluten free pasta! Have you heard of the #1 fastest-growing gluten-free fresh pasta brand in the US? It's called @taste_republic Taste Republic is a certified B Corp! What does that mean? It means that they are vetted and meet high standards relating to social & environmental performance, transparency, and accountability. Taste Republic's goal is to make great pasta that is inclusive for all dietary restrictions. A teal package signifies that the product is gluten-free. A white package means that the product is gluten-free & grain-free. A navy package means that the product is gluten-free & certified plant-based. Alongside this, Taste Republic has converted their local energy usage to 100% solar and continuously searches for sustainable packaging options. What I was most impressed by with the product is the combination of the taste of the product and the texture. I'm such a big fan of chicken alfredo and so excited to enjoy it with the Taste Republic gluten-free pasta. I'm excited to try out some additional products from this brand asap! Are you interested in Taste Republic's gluten free pasta? If so you can order directly from their website (currently shipping to 48 states but planning to expand) or use the store locator to find them in stores across the US & Canada. #GlutenFree #TasteRepublic #TasteRepublicGlutenFree

Double tap if you agree! 💛 Chronic illnesses tend to become more complicated as time goes by, especially without proper treatment. Some chronic illnesses are degenerative. Whether it's a slow or a rapid pace, it's important that people with these chronic illnesses and others are aware as quickly as possible of what's happening to their bodies and treatment options available for them. For example, if someone is diagnosed earlier with something like POTS or EDS, then there may be options available for treatment via exercise plans. However, if these chronic illnesses have progressed heavily then those options may be limited. Personally for me exercise is still an option for POTS and EDS, but my MCAS has been an issue for a long time without proper treatment so I heavily depend on having the proper medicine in order to be in good standing with my body. Also for those of us with EDS we know that faulty collagen is linked to many different chronic illnesses. Early diagnosis of EDS can help prevent some of its related chronic illnesses or at least prevent their progression. There is a lot that goes into fixing the current healthcare system. There is a gender disparity, race disparity, and other disparities which increase how long it takes people to get the proper diagnosis and treatment. What I love about the online chronic illness community is that we can help link people to resources so they can best find proper doctors, treatments, and community. 💛 How do you think we can improve getting the right diagnosis/treatment for patients sooner? Comment below! For more content like this follow @joannanobanana Share this post on your story to help spread the message! #MastCellActivationSyndrome #EhlersDanlosSyndrome #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome #ChronicIllness #ChronciallyIll

I love spooky season more and more every single year! My favorite aspects of it are the cute little ghosts and the fun outfits! I also love to do some fun, fall-related activities, so the other day I had a chance to stop by the pumpkin house. I’ll definitely be stopping by the pumpkin patch soon and cooking up some pumpkin related recipes! (This month also includes Dysautonomia Awareness Month and International Mastocytosis & Mast Cell Diseases Awareness Day so it’s quite a busy month! It’s also the month of the Teal Pumpkin Project!) What are your favorite fall and/or spooky season activities? Comment below! I would love to hear all about it! Use promo code “Joanna10” at @francescas for 10% off! #FallFashion #FallStyle #PetiteFashion #CurvyFashion #PetiteCurvyFashion #franAmbassador #FreeToBeYou

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