Joanna Hanaka
Lifestyle Influencer and Disability Advocate
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Joanna (she/her) 26. Queen of allergies. 👑 Loves to promote both mental and physical health and making it accessible to as many people as possible!
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To all my fellow chronically ill friends, May the hardships feel at least a little bit lighter and the good days bring you even more joy 💛 May parts of yourself that you miss return back to you in one way or another 🫂 You’re never alone in this 💕 Your friend, Joanna What do you miss about yourself before chronic illness heavily affected your life? If it always affected you heavily, what do you feel like you missed out on? #ChronicIllness #ChronicallyIll #MastCellActivationSyndrome #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #Dysautonomia
To all my fellow chronically ill friends, May the hardships feel at least a little bit lighter and the good days bring you even more joy 💛 May parts of yourself that you miss return back to you in one way or another 🫂 You’re never alone in this 💕 Your friend, Joanna What do you miss about yourself before chronic illness heavily affected your life? If it always affected you heavily, what do you feel like you missed out on? #ChronicIllness #ChronicallyIll #MastCellActivationSyndrome #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #Dysautonomia
Living as a disabled & chronically ill person means experiencing a wide variety of ableist comments. 😔 These are some ableist comments which I’ve received. Which of these have you gotten? What are some ableist comments you would add to the list? 🤔 #ChronicIllness #ChronicallyIll #MastCellActivationSyndrome #EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome
#Ad Is the air at your job or in your house making you sick? At one point, that was the case for me! I was finding it incredibly difficult to concentrate, especially due to constant headaches. Eventually I learned about how common it is to have poor airflow which was causing the CO2 at work and in my bedroom to be way too high. Nowadays, I make sure that my CO2 levels stay at a good number by using the Aranet4 HOME! Check out the link in my bio to learn more about the current major Aranet promotion of 20% + 20% off! #CO2Monitoring #IndoorAirQuality #CO2Levels #Aranet4Home #HealthierLiving #HealthyHome #WellnessJourney
POTS math 💅🏻 As Dysautonomia Awareness Month comes to a close and I've been super intrigued by "girl math", I wanted to shed some light on the intricate math that goes on inside our bodies when living with Postural Orthostatic Tachycardia Syndrome (POTS). For those of us with POTS, our bodies are always in calculation mode: 💧 Water: We're always figuring out how much we need to drink to stay hydrated. Too much or too little, and our bodies let us know with symptoms like dizziness, brain fog, or rapid heart rate. 🧂 Salt: Salt becomes our secret weapon. We add it to our diet to help our bodies retain fluids and regulate blood pressure. Finding the right balance is crucial, like a culinary science experiment every mealtime. ⚡ Electrolytes: These are the conductors in our body's symphony. We need to ensure that we maintain the right balance of electrolytes to avoid heart palpitations, muscle cramps, and fatigue. 🌡️ Temperature: Our bodies are like over-sensitive thermostats, constantly trying to keep from getting overly cold and from getting overheated. A change in temperature can lead to a cascade of symptoms. Living with POTS means we're always doing this math, recalculating, and adjusting our strategies. As we near the end of Dysautonomia Awareness Month, let's take a moment to appreciate the adaptability and mathematical equations of those living with POTS and other forms of Dysautonomia. Question: For those with any form of Dysautonomia, how do you balance this sort of math? I would love to hear from you! Follow @joannanobanana for more posts like this! #PotsSyndrome #PosturalOrthostaticTachycardiaSyndrome #DysautonomiaAwareness #DysautonomiaAwarenessMonth #POTSawareness #DysautonomiaWarrior #InvisibleIllness
POTS math 💅🏻 As Dysautonomia Awareness Month comes to a close and I've been super intrigued by "girl math", I wanted to shed some light on the intricate math that goes on inside our bodies when living with Postural Orthostatic Tachycardia Syndrome (POTS). For those of us with POTS, our bodies are always in calculation mode: 💧 Water: We're always figuring out how much we need to drink to stay hydrated. Too much or too little, and our bodies let us know with symptoms like dizziness, brain fog, or rapid heart rate. 🧂 Salt: Salt becomes our secret weapon. We add it to our diet to help our bodies retain fluids and regulate blood pressure. Finding the right balance is crucial, like a culinary science experiment every mealtime. ⚡ Electrolytes: These are the conductors in our body's symphony. We need to ensure that we maintain the right balance of electrolytes to avoid heart palpitations, muscle cramps, and fatigue. 🌡️ Temperature: Our bodies are like over-sensitive thermostats, constantly trying to keep from getting overly cold and from getting overheated. A change in temperature can lead to a cascade of symptoms. Living with POTS means we're always doing this math, recalculating, and adjusting our strategies. As we near the end of Dysautonomia Awareness Month, let's take a moment to appreciate the adaptability and mathematical equations of those living with POTS and other forms of Dysautonomia. Question: For those with any form of Dysautonomia, how do you balance this sort of math? I would love to hear from you! Follow @joannanobanana for more posts like this! #PotsSyndrome #PosturalOrthostaticTachycardiaSyndrome #DysautonomiaAwareness #DysautonomiaAwarenessMonth #POTSawareness #DysautonomiaWarrior #InvisibleIllness
#Ad Recognize the warning signs of mold-related illness! It’s important for everyone to check for signs of mold in their home, especially if you have any of these symptoms (and have yet to figure out their cause): Possible symptoms of mold illness: Coughing, Shortness of Breath, Chest, Tightness, Sore Throat, Hives, Headaches, Memory Problems, Difficulty Concentrating, Abdominal Pain, Muscle and Joint Pain, Sensitivity to Light, Increased Sensitivity to Chemicals and Fragrances Through humidity monitoring including alerts and notifications, Aranet helps to let people know to take immediate action to reduce humidity by using dehumidifiers, improving ventilation, or sealing leaks that may be contributing to excess moisture. Click the link in my bio to learn more about the major Aranet4 HOME promotion of 20% + 20% off to help track your humidity levels! #MoldAwareness #Mold #MoldIllness ##MoldPrevention #AranetHome4 #AirQualityInsight #HealthyLiving TT Caption: #Ad Prevent mold-related illness asap! Get the Aranet4 HOME today for more quality air insight. 20% + 20% off throughout October 31st! #MoldAwareness #Mold #MoldIllness ##MoldPrevention #AranetHome4 #AirQualityInsight #HealthyLiving
Double tap if you can relate! 💛 Life with chronic illness is a continuous tightrope walk between our fundamental needs and the desires that fuel our spirit. Every day presents new challenges and triumphs as we strive to find that delicate equilibrium. External pressures and expectations that society, family, friends, co-workers, managers, and many others can place upon us make it an even trickier situation. It's not just about managing our own inner balance; it's also about navigating the external pressures and misconceptions. That being said, through it all, we find strength in the unwavering support of those who understand our unique battles. So here's to everyone who can relate to this post. Sending much love your way! 💛 Question: What's the best tip that you've learned (or are in the process of learning) to manage living with a chronic illness especially in relation to others around you? I would love to hear your insight! Follow @joannanobanana for more posts like this! #ChronicIllness #ChronicallyIll #ChronicPain #MastCellActivationSyndrome #EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome #HistamineIntolerance #ConnectiveTissueDisorder #Dysautonomia
Double tap if you can relate! 💛 Life with chronic illness is a continuous tightrope walk between our fundamental needs and the desires that fuel our spirit. Every day presents new challenges and triumphs as we strive to find that delicate equilibrium. External pressures and expectations that society, family, friends, co-workers, managers, and many others can place upon us make it an even trickier situation. It's not just about managing our own inner balance; it's also about navigating the external pressures and misconceptions. That being said, through it all, we find strength in the unwavering support of those who understand our unique battles. So here's to everyone who can relate to this post. Sending much love your way! 💛 Question: What's the best tip that you've learned (or are in the process of learning) to manage living with a chronic illness especially in relation to others around you? I would love to hear your insight! Follow @joannanobanana for more posts like this! #ChronicIllness #ChronicallyIll #ChronicPain #MastCellActivationSyndrome #EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome #HistamineIntolerance #ConnectiveTissueDisorder #Dysautonomia
On World Mental Health Day, let’s talk about how lack of healthcare access plays a role in the mental health of patients. 🫂 As someone with Mast Cell Activation Syndrome, I was fortunate to find one doctor within my network to get me tested and started on treatment. When I had arrived to her office I couldn’t even walk by myself because I was so weak. I was unable to have any proper meals. By getting started on the right medicine regiment, my quality of life got so much better! Then a letter arrived as I was heading out the house to let me know that she will no longer be working within my state (and seeing her out of state hasn’t been a possibility either.) It crushed me because it felt like somehow I would turn back into who I was before I received her care but the truth is that I already had the medicinal plan, the diagnosis (which is actually didn’t find out until another appointment), and the knowledge I needed to keep this new level of quality of life. Chronic illness is difficult to manage and can cause so many mental health issues. Be kind to yourself, friend. 💕 #ChronicIllness #ChronicallyIll #MastCellActivationSyndrome #EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome
Double tap if you can relate! 💛 Let's take a moment to explore the unique way chronic illness shifts our perspective on what it means to feel good. Picture waking up with a collection of sensations that others might categorize as distressing, yet finding a sense of accomplishment in the midst of it all. We rewrite our definitions of wellness by learning how our bodies function and when they need healthcare, rest, etc. We learn the language of our bodies, speaking in hushed tones of self-care, and shouting with pride at our victories, no matter how small they may seem to others. What symptoms do you experience on the daily which are normal to you but would worry others if they experienced them? I would love to hear about your experience! 💛 Follow @joannanobanana for more posts about chronic illness! #MastCellActivationSyndrome #EhlersDanlosSyndrome #MCAS #EDS #Dysautonomia #PotsSyndrome #PosturalOrthostaticTachycardiaSyndrome #ChronicIllness #Spoonie #InvisibleIllness #CranioCervicalInstability #Dysautonomia #PotsSyndrome #ChronicPain #Heds
Double tap if you can relate! 💛 Let's take a moment to explore the unique way chronic illness shifts our perspective on what it means to feel good. Picture waking up with a collection of sensations that others might categorize as distressing, yet finding a sense of accomplishment in the midst of it all. We rewrite our definitions of wellness by learning how our bodies function and when they need healthcare, rest, etc. We learn the language of our bodies, speaking in hushed tones of self-care, and shouting with pride at our victories, no matter how small they may seem to others. What symptoms do you experience on the daily which are normal to you but would worry others if they experienced them? I would love to hear about your experience! 💛 Follow @joannanobanana for more posts about chronic illness! #MastCellActivationSyndrome #EhlersDanlosSyndrome #MCAS #EDS #Dysautonomia #PotsSyndrome #PosturalOrthostaticTachycardiaSyndrome #ChronicIllness #Spoonie #InvisibleIllness #CranioCervicalInstability #Dysautonomia #PotsSyndrome #ChronicPain #Heds
Which symptoms of your Ehlers Danlos Syndrome do you find most frustrating? 💛 These are some aspects of my skin and nails related to my Ehlers Danlos Syndrome. (Please note that this is just me sharing my experience. You may have the same symptom but it may not be due to EDS. How EDS presents itself can be very individualized including depending on which form of EDS a person has. To my knowledge I have hEDS but I will be ruling out other forms with a genetic test in the near future.) #EhlersDanlosSyndrome #EDS #EDSAwareness
Double tap if you experience this too! 💛 In the tapestry of life, the threads of our health can sometimes be woven with complexities that challenge our sense of balance. Living with a chronic illness has its own dance of better and tougher days.💃 One moment, we might find ourselves embracing the sweet relief of a better health day, where your symptoms subside. In those moments, it's like you're catching a glimpse of what life used to be and/or could be. On these relatively better days, the urge to pack in all the missed moments, postponed plans, and unfinished projects becomes almost irresistible. It’s a reminder to seize the moment, because who knows when this opportunity will come next time? If it’ll come again? We push ourselves, oftentimes a bit too far, striving to capture all those moments in a net of enthusiasm. That’s okay. Don’t be too harsh with yourself for doing this. It's a journey of learning to cherish the energy we have today while keeping an eye on the energy we'll need tomorrow. It's a delicate equilibrium between seizing the day and nurturing the body. So here's to those of us who haven’t quite figured out that delicate equilibrium yet! May life allow us some relatively better health days filled with rest, excitement, and no errands to run! 💛 How do you manage on your relatively better health days? Do you have any tips to not overdo it? I would love to hear your insight! Follow @joannanobanana for more posts about chronic illness! 💕 #ChronicIllness #MastCellActivationSyndrome #EhlersDanlosSyndrome #MCAS #Spoonie #InvisibleIllness #ButYouDontLookSick #CranioCervicalInstability #AutonomicDysfunction #InterstitialCystitis #Dysautonomia #PotsSyndrome #ChronicPain #Heds #PosturalOrthostaticTachycardiaSyndrome
Double tap if you experience this too! 💛 In the tapestry of life, the threads of our health can sometimes be woven with complexities that challenge our sense of balance. Living with a chronic illness has its own dance of better and tougher days.💃 One moment, we might find ourselves embracing the sweet relief of a better health day, where your symptoms subside. In those moments, it's like you're catching a glimpse of what life used to be and/or could be. On these relatively better days, the urge to pack in all the missed moments, postponed plans, and unfinished projects becomes almost irresistible. It’s a reminder to seize the moment, because who knows when this opportunity will come next time? If it’ll come again? We push ourselves, oftentimes a bit too far, striving to capture all those moments in a net of enthusiasm. That’s okay. Don’t be too harsh with yourself for doing this. It's a journey of learning to cherish the energy we have today while keeping an eye on the energy we'll need tomorrow. It's a delicate equilibrium between seizing the day and nurturing the body. So here's to those of us who haven’t quite figured out that delicate equilibrium yet! May life allow us some relatively better health days filled with rest, excitement, and no errands to run! 💛 How do you manage on your relatively better health days? Do you have any tips to not overdo it? I would love to hear your insight! Follow @joannanobanana for more posts about chronic illness! 💕 #ChronicIllness #MastCellActivationSyndrome #EhlersDanlosSyndrome #MCAS #Spoonie #InvisibleIllness #ButYouDontLookSick #CranioCervicalInstability #AutonomicDysfunction #InterstitialCystitis #Dysautonomia #PotsSyndrome #ChronicPain #Heds #PosturalOrthostaticTachycardiaSyndrome