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LupusChick.com -LupusChick is a 501c3 created to support patients & families. Spend some time with us, ask questions & get support from other LupusChick's!

Location Rochester, NY
Country United States
Member Since DECEMBER 18, 2018
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Highlights
2021 May Lupus Virtual Symposium Sign Up

You are invited to the FREE Virtual 2021 Lupus Scientific and Patient Education Symposium, brought to you by The Lupus Foundation of New England. This year’s amazing agenda includes both physicians and patient advocates, including LupusChick’s Founder, Marisa, who will be speaking in the afternoon about hope and wholeness. Register at www.lupusne.org and join us on May 6th. See the entire agenda and sponsors below!

The LupusChick/Christi Henderson College Stipend is Back!

The LupusChick/Christi Kay Henderson Educational Stipend will gift two people living with lupus, who are currently in school, with a $500 educational stipend each to use towards classes, books, supplies, or living expenses while attending class. We asked her husband Todd to tell us a little about his amazing wife and this is what he shared: “Christi Kay Henderson was and is the strongest woman I know. We went into this process with John Howard attempting to raise enough money for at least one stipend to be given away, and were elated at the end of the event when enough money was raised to give away one stipend in Christi’s name for the next four years! If you have been diagnosed by a physician with lupus and are attending a college, university, trade school, or certification program, you can apply for the Christi Kay Henderson stipend.

How to Help Ourselves in the Midst of a Health Crisis

Here at Lupus Chick, our mission is to help you live a thriving Autoimmune LifeLearn more about us > If you live with any chronic illness, you have most likely heard these or similar phrases in the past: “ Let the ones who question know at this time, you are just seeking support and comfort; when you know more, you will share it with your “army”. If  you live with a chronic illness, then you have likely had plenty of experience getting through difficult times.

Grieving our Pre-Chronic Illness Lives

One of the specific methods of finding and learning to love and accept your new you is discovering a new passion that you absorb into your changed life now that you live with a chronic illness. Two years following my diagnosis, I made a momentous decision to change the negativity of having lupus into the positivity of dedicating my life to helping those people who shared my illness, cope and learn to bring lupus into their very being. As several support group meetings have now passed since this newly diagnosed lady attended her first meeting, she now relates with pride in her voice that she has learned she has great organizational skills and has begun planning a virtual walk in her area to raise money for lupus research. Finding this new passion has given her confidence, has allowed her to meet people in the lupus community, and has sent her on a fast track to accepting who she is now, a woman who happens to have a chronic illness, yet thrives to be the very best she can be.

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